Diagnoses: the good, the bad and the ugly

We waited almost a year for the appointment. I started out suspecting Baby Azulito (now preschooler Azulito!) may be on the autism spectrum. But since he began to receive state funded supports for his former severe speech delay and them for various other symptoms/ issues (separation anxiety, sensory seeking and defensive behaviours, hyperactivity, inflexibility to change/ new/ different/ unexpected/ unscheduled, social anxiety) his symptoms began to shift somewhat and I wondered where we would end up.

This past week Azulito was diagnosed with severe Sensory Processing Disorder, ADHD (Attention Deficit Hyperactivity Disorder) and anxiety. The specialized psychiatrist who assessed him offered to follow and treat him. I accepted. I told his child care providers the following day, with a plan to include them in the recommended path  forward once we have our first private meeting with the new doctor in a few weeks.

Two days later they told me he had to leave the child care centre unless he attended with a full time one on one Aide, claiming they were not equipped to handle his needs.

And so it begins.

9 thoughts on “Diagnoses: the good, the bad and the ugly

  1. How horrible of that daycare. I am happy you got a diagnosis. We had a similar path ( behavior and speech delay) led us to get ABA treatment after finally having a diagnosis. He is now 5 and a different child. He responded SO well to ABA and just tested off the spectrum ( although I think he falls in it somewhere still). A diagnosis means relief then lots of work ahead. Sending you love and strength.

  2. Hey, I’m about to post but Ansel just got an autism spectrum disorder diagnosis so maybe we should walk this path together just like the other one. I fully anticipated he’d get a SPD/ADHD dx and there are a lot of similarities from the little I’ve been able to read.

    • ❤ there are a ton of similarities. The only reason he didnt get an asd diagnosis instead is the slowly emerging, very delayed and mostly inappropriate social skills he is starting to develop. He is also suddenly starting on imaginative play- which came with language supports that were also hard won. I’d love to support each other on this next leg of our journeys. Thanks!

  3. Hugs, friend. Braeden has a one on one aid at school and also on the bus. Let’s have a call soon – I want to hear all about it. I’ll also pass along what we’ve learned so far.

    • Thanks love. Funny, those are the words I used today about A – we all (the members of his various teams) need to meet him where he is and work quietly to bring him up, with dignity and respect. Because he is not “bad” and his response to folks being up in his face when he needs time out and to decompress is not “bad behaviour”.

      • You’re building that bridge–between what society wants him to do and what he is capable of doing. And I just know that he will find harmony in this world, with you by his side ❤

  4. I am so sorry that you are having to deal with this nonsense. I am covering you guys in prayer. It will all work out for your good !

    Definitely look into a private home school teacher. The one
    I hired for baby girl has a doctorate and is a retired teacher. One on one may be best for his educational growth and development.

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